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Nine years ago the BMJ s Tessa Richards underwent thoraco-abdominal surgery for adrenal cancer, followed by further surgery to remove metastases. Now the senior editor in charge of the journals patient partnership agenda, she reflects on how her own experience of illness and recovery, and of joining the ranks of patients who survive the odds, have shaped her understanding of the patient perspectiveDoctors arent good at assessing their own symptoms. They either leap to diagnose serious disease or, more commonly, go into denial. They are slow to accept that they are ill and slower still to seek help. Take the following case, for example.In autumn 2003 I developed sharp intermittent back pain when driving or sitting for any length of time. I was also troubled by headaches. Some days I felt inordinately tired and found it difficult to work. My family advised me to go to my general practitioner. I did not follow their advice. Worse, I consulted myself.What would you do, I asked myself, if you were a GP (as I was once), and a woman over 50 came in complaining of backache, headaches, and tiredness? A silly question, of course. Consultations are not formulaic. In 10 minutes its impossible to take a detailed history and conduct the full examination that such symptoms theoretically warrant. In the absence of obvious disease doctors have to act on clinical instinct after what is often a cursory initial assessment.The symptoms I had were common, their severity difficult to gauge. I doubted that my GP would find anything amiss if he examined me or that investigations would show anything. Go for self help, I concluded: osteopath for the back, paracetamol for the head.Three months on and life was becoming a struggle. Friends sympathised. We all feel like that,

Interference in the form of delays that may be allowed but arenot requiredby other laws isnot automatically exemptedfrom implicating the information blocking definition, he said.Posnack said that entities should examine their practices that may have been set up in relation to laws that allow certain periods of delay before they share data, as these once permitted practices may now interfere with electronic health information access in a way that could constitute information blocking.

Interoperability in 2030 should support the use of advanced health IT applications in conjunction with EHRs for enhanced clinical decision support, stakeholders told ONC.

The implementation of gender-inclusive EHR data standards will help support health equity for gender-marginalized patients, according to ONC leadership.

For example, Apple recently updated its privacy label to clearly reveal how data is obtained, giving the consumer a choice. At that time, a reported 95% of all Meta (formerly known as Facebook) users with an iPhone iOS opted not to share their data*.

Five CIOs, a COO and a CMIO chart a course for the complex demands of data exchange, and discuss the technologies and strategies they plan to focus on in the next five years.

If my own experience is representative, patients may see dozens of errors. One of my doctors summary visit notes contained 19 errors and a whole section that made no sense.Errors, which Heather Gantzer, M.D., M.A.C.P, told me occur in 100% of medical records can include wrong medications, old problems listed as current problems, a statement that a procedure was performed when it was cancelled and ICD-10 codes for conditions that had nothing to do with the reason the patient went to the doctor in the first place.

The identified guiding principles can inform the development of good machine learning practices to promote safe, effective, and high-quality medical devices.

October is a great month for so many reasons. Costume shopping with the kids, the beauty of autumn, andhitting close to home for me as a breast cancer survivorNational Breast Cancer Awareness Month! It is a time to raise awareness about breast cancer, share how early detection can save lives, and remind us all that breast cancer is not just a disease that threatens women. It is a time to spread awareness in support of all the current breast cancer fighters,

I called my doctors office and I said, I think my information has been overlaid with another patient in your office, Hunsaker says. When the person on the other end of the phone didnt know what an overlay was, Hunsaker asked to speak to the office manager so she wouldnt have to explain it again.