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Patient advocates have developed strong partnerships with the clinical and research communities. When the stakes for accessing reliable information are high, those with serious illnesses are particularly invested in disseminating trusted information. This doesnt mean we are immune to misinformation, but given our high risk for Covid-19 vulnerability, we recognize an added layer of diligence to follow our clinical partners in sharing trusted information. Grace Cordovano, an oncology patient advocate, displays the strength of partnership with patients and clinicians in this LinkedIn post, calling for resources. She writes, Im looking for credible references and information on advance care planning with respect to coronavirus. She goes on to tag both patients and physicians.

We are back today with our new live show The THCB Gang that will be preserved as a weekly podcast and available on our Itunes & Spotify channels. Each week 4-6 semi-regular guests drawn from THCB authors and other assorted old friends of mine will shoot the shit about health care business, politics, practice, and tech. It should be fun but serious and informative!To kick off this week, joining me Ill have Michael Millenson (@MLMillenson), Grace Cordovano (@GraceCordovano), Vince Kuraitis (@VinceKuraitis), Ian Morrison (@seccurve)! & Brian Klepper (@bklepper1).

We’ll discuss the opportunities and challenges of technology for patients and how it affects their experience managing their care and living their lives. We will also consider the health inequities that go along with tech solutions as well, and considerations for how to co-design future health innovations. And we would be remiss if we didn’t talk about the current global health concerns and how vulnerable populations hear you when you say “only the high risk should worry.”

Grace Cordovano is an expert healthcare navigating solutionist and award winning, board-certified patient advocate specializing in the oncology space. She is the founder of Enlightening Results and Unblock Health - a suite of services that finally provides patients and carepartners with a way to level the playing field and demand access to the critical information needed to make informed, engaged, and empowered decisions about their care. In this episode, she talks about challenges patients faces because of the complexity of the healthcare system in the US, she shares her view about the need of patients getting access to their data and more.

As more patients are taking the drivers seat of their care, they encounter more and more frustrating HIPAA roadblocks and questions. Grace Cordovano, PhD, board-certified patient advocate, founder of Enlightening Results and co-founder of Unblock Health, frequently encounters the many facets of HIPAA as they relate to patients in real life. Here are some common scenarios presented by Dr. Cordovano that patients struggle with respect to HIPAA and what options may exist or how outcomes may be influenced.

From a patient and carepartner perspective, every stakeholder in the health care ecosystem claims they are putting the patient in the center of their care. Its crystal clear the vast majority of agents are profits over patients. In the new Roaring 20s, we demand partnership rooted in transparency, autonomy, inclusivity, and trust.

Balancing Patient Privacy with Data Access: Lessons from the Field

The use of secure, standards-based APIs will create new, exciting opportunities for patients and providers alike to share their data to improve their health. On this International #DataPrivacyDay, join a group of technologists, privacy experts, and patients for a robust discussion on balancing privacy with the expanding flow of health information.

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Grace Cordovano is a rare breed! She is an official Patient Advocate supporting people in navigating the complex and confusing healthcare system after they have received a cancer diagnosis.

This is what information blocking looks like boots on the ground.These are the realities people face when they are living with life-altering, life-limiting, absolutely earth-shattering diagnoses.

When I saw the announcement of Unblock Health by my friends and colleagues, Dr. Grace Cordovano, BCPA, and Shahid Shah, I knew I had to learn more and help them in their efforts to Unblock Health f