Isn’t HIPAA Enough?

We MUST level the playing field so patients can fight back when faced with data blocking and lack of transparency.

It’s only a matter of time until it happens to you or your loved one. When you are dealing with a life-altering, earth-shattering diagnosis and you can’t get access to your medical records, it’s an absolute disaster. Trust us. We know professionally and personally. Together, we can eliminate data blocking, enhance information integrity, drive transparency, and truly empower patients. This is consumerism of the future.

The reality is, it’s not enough to be HIPAA 1996 compliant in our digitized world. The new Roaring 20’s expect bigger and better things! Unblock Health recognizes that HIPAA repeatedly and regularly fails patients and their carepartners daily. HIPAA violators are not held accountable. Those that are data liberators are not nearly celebrated enough as ecosystem role models. Patients and consumers have a right to know who is creating barriers and who is paving the way for them to be successful in their healthcare journey. Unblock Health will be leveraging the power of social media to lead REAL change.

Unblock Health is revolutionizing patient empowerment, real-world interoperability, and transparency of the future. Unblock Health tackles real-world patient unmet needs, providing the actual interoperability people and consumers need to be informed, empowered, and engaged members of their healthcare journey.

Looking to end data blocking? Are you seeking transparency? Unblock Health will lead the way. Looking to end data blocking? Are you seeking transparency? Unblock Health will lead the way.

But what does social media have to do with it? Glad you asked! Don’t miss our next piece! Can’t wait that long? We don’t blame you! Dive in at https://www.unblock.health/ and don’t hesitate to reach out with any questions.

Yours in Data Unblocking Health,

Grace Cordovano & Shahid Shah

What is the Value of Unblock Health?

Data blocking and lack of transparency are 2 of the biggest detriments to not only patient empowerment and engagement, but also to patient care, safety, the patient experience, and consumerism.

Point of care is in a state of dynamic metamorphosis. Gone are the days where doctors only know best. There is a clear shift from paternalistic to participatory medicine, where patients are not only demanding the driver’s seat to their care, but are also hitting the accelerator and driving through any barriers in their way.

Patients and consumers want access to their health information where they are, immediately, at the touch of their fingertips, especially when their life, or their loved one’s, depends on it.

Unblock Health is designed to authentically meet patients where they are, supporting their struggles with data blocking and lack of transparency in their local communities and care settings.

There are currently no other patient self-advocacy tools to:

  • facilitate and digitally support patient-initiated amendment requests.

  • assist patients struggling with data blocking. Tracking barriers to data access, documenting and reporting HIPAA violators, as well as celebrating data liberators, are critical to the future of healthcare, authentic consumerism, and real-world interoperability.

  • assist patients in requesting their data from mhealth and digital health technologies, such as, but not limited to, wearables, apps, remote patient monitoring devices, etc. Patients need real-time access to all their data for it to be actionable.

  • request an itemized list of where their data has been shared and/or sold.

Unblock Health is glowing with value for patients, carepartners, consumers, and care providers who are ready to champion data access and end information blocking Unblock Health is glowing with value for patients, carepartners, consumers, and care providers who are ready to champion data access and end information blocking

But what about HIPAA? Isn’t that enough, you ask? Stay tuned for our next piece! Can’t wait that long? We don’t blame you! Dive in at https://www.unblock.health/ and don’t hesitate to reach out with any questions.

Yours in Data Unblocking Health,

Grace Cordovano & Shahid Shah

What is Unblock Health?

Unblock Health is a first-in-class patient advocacy tool designed for patients and consumers who are determined to be empowered in their health care journey and are no longer willing to accept traditional barriers to their information. Unblock Health is armed and ready to address common, real-world, unmet needs patients, their carepartners, and consumers face daily.

Unblock Health is designed to:

  • hold healthcare organizations & care providers accountable when they do not release medical records in a timely, HIPAA compliant manner, while carefully tracking the process of interactions needed. Functionality is in place to publicly report both data blocking and HIPAA violators in real-time as well as to celebrate data liberators and access champions in the public domain

  • request patient-generated health data (PGHD) from mhealth & digital tech devices and apps.

  • request an itemized list of all the places that one’s health information has been “shared” or sold to facilitate transparency and awareness of human data science practices.

  • facilitate a digital workflow for the implementation of addendums that may be flagged by patients and carepartners upon review of their medical records and health information.

Unblock Health is the key to the top 4 barriers patients and consumers face in making informed decisions about their care. Unblock Health is the key to the top 4 barriers patients and consumers face in making informed decisions about their care

But what is the value of Unblock Health, you ask? Stay tuned for our next piece! Can’t wait that long? We don’t blame you! Dive in at https://www.unblock.health/ and don’t hesitate to reach out with any questions.

Yours in Data Unblocking Health,

Grace Cordovano & Shahid Shah

The Birth of Unblock Health

Happy New Year 2020! With a new year and new decade upon us, we’d like to tell you the story of how Unblock Health was born.

Once upon a time, at HIT Expo 2018 in sunny New Orleans, a board-certified patient advocate and a health IT thought leader got to talking about patient unmet needs. The advocate fervently emphasized the struggles patients and their loved ones faced due to lack of interoperability, rampant data blocking, and little to no transparency while trying to navigate their life-altering diagnoses. The health IT thought leader emphasized the intricacies and challenges the IT community faced in delivering solutions. They both agreed that the sooner patients recognized that no one was coming to save them, the better off they would be. But once that realization came to fruition, how could patients be equipped with tools and strategies to stand a chance against the well-known barriers ahead?

Unblock Health is the culmination of over 20 years of boots-on-the-ground patient advocacy experience perfectly complemented with 30 years of leadership in digital tech, strategy, architecture, and engineering expertise to deliver an easy-to-use solution for the most neglected stakeholders in our health care ecosystem: the patient and their carepartner.

Patients need specific tools to drill through the barriers of data blocking. Patients need specific tools to drill through the barriers of data blocking.

We’ve personally and professionally witnessed the devastating, multi-faceted struggles people face while managing their care in the midst of a life-altering diagnosis. We’ve listened to patients’ frustrations and witnessed the barriers they face in accessing their data. We’ve heard patients demands for transparency and watched them be completely ignored. We know first-hand the grief, loss, anxiety, and distrust that stems from data blocking.

We have vowed to not stand back silently, powerlessly, and helplessly a moment longer.

What is Unblock Health? Stay tuned for our next piece! Can’t wait that long? We don’t blame you! Dive in at https://www.unblock.health/ and don’t hesitate to reach out with any questions.

Yours in Data Unblocking Health,

Grace Cordovano & Shahid Shah